SAY A PRAYER

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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Thank you, we've had a lovely Christmas, they've both really enjoyed themselves and Father Christmas has brought them everything they asked for this year (all the health professionals who've asked Libby over the last couple of days have asked what Father Christmas is gettig her and she's replied that she didn't know because last year she wated a telescope and she got a bobble hat instead! It has to said last years list was huge and the telescope was the only omission) I'm looking around my living room, there's not room to put anything down, despite us picking up all the wrapping and packaging. Bless them, they make Christmas wonderful.

Last night we had tears, she couldn't get to sleep and she couldn't get it out of her head what had happened and she was scared that Father Christmas wouldn't come if she didn't get to sleep in time. She finally went to sleep at 1am but today she's been fine. We banned family from talking about it in front of her. I had a talk to her last night, she was feeling sorry for herself, why her and once I'd told her that I took tablets everyday for the stomach operation I had as a child, her dad's completely deaf in one ear, each grandparent has an ailment, two from childhood and both uncles have something too. What a bunch we are but it put it into perspective, that none of us thought about these things unless we had to recount them to doctors.

We couldn't ask for better care for her, we need to be prepared for it happening again, have things to hand to entertain her and plenty of drinnks for us.

Fingers crossed, I know I'll be nervous when the tests approach and certainly when we have to see the consultant.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
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JackFavell
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Re: SAY A PRAYER

Post by JackFavell »

Alison, I am so glad you had a good Christmas! I have been thinking about you all day and all day yesterday, and just want to wish you all the best.
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MissGoddess
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Re: SAY A PRAYER

Post by MissGoddess »

Hi Alison---i haven't been here much and just saw this thread...I'm sorry your Libby is going through this, but I'm confident everything will be fine. I had a seizure when I was about 9 or so, and was consequently on medication (Tegretol) for a long while, however it didn't impede my life in any other way. I'm sure Libby will come through fine, and so will you. One day at a time, and know that all will be well.
"There's only one thing that can kill the movies, and that's education."
-- Will Rogers
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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Thanks April, it's good to know that. Doctors just do't talk in certainties, they can't but I wish they could.

Thanks for the thoughts Wendy. Hope Alice had a good day.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
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JackFavell
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Re: SAY A PRAYER

Post by JackFavell »

Alice had a good Christmas, she got a lot of real art supplies and her favorite gift was a sketch tablet. If I'd known that, I would have skipped all the other more exotic stuff.

and though I didn't quite know how to say it before without sounding weird, Alice also had seizures when she was born, but has been healthy since then, thank goodness. I think it might have taken some years off of Andrew and me, what with the worrying and all those doctors visits.
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MissGoddess
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Re: SAY A PRAYER

Post by MissGoddess »

I know how scary it must be, even more for the parent than the child. You must feel helpless, as you say.
Regardless of what is causing it, I'm very confident she will get better and at most, have to take some
medicine for a while. Just know you have this place to come and ease your mind a wee bit. For me,
distractions of any pleasant kind always helped me stay balanced and not feel overwhelmed. I'm
glad you at least have family around you. Your Mum sounds like a dear. I could never tell my mother
anything serious, she's very negative, I'm afraid, and not intentionally.
"There's only one thing that can kill the movies, and that's education."
-- Will Rogers
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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Thank you.

I think my main concern at the moment is not knowig what will happen next, another one could come at ay time but in the meantime we are carrying on as normal, it's that slight feeling of anxiety in the pit of my stomach that is the constant reminder, I don't mind carrying that feeling around but don't want her to feel it.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
klondike

Re: SAY A PRAYER

Post by klondike »

charliechaplinfan wrote:Thank you.

I think my main concern at the moment is not knowig what will happen next, another one could come at ay time but in the meantime we are carrying on as normal, it's that slight feeling of anxiety in the pit of my stomach that is the constant reminder, I don't mind carrying that feeling around but don't want her to feel it.


Well put, Alison - and of course it's simple to grasp what you mean: we always want to be living shields for our children, sometimes bold & bright and clear as the noonday sun, other times as invisible as possible, so that our charges will not be aware of our protections or the depth of our worries.
One of the best summations I've ever read on this topic was, bizarrely, from writer Stephen King, who said, succinctly: "No-one ever knows true fear until they're a parent."
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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Wise words from Stephen King.

We've had a really lazy Boxing day, I've made small attempts to restore order to the living room but I'm fighting a losing battle. Tomorrow I'll start taking things up to their rooms.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
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silentscreen
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Re: SAY A PRAYER

Post by silentscreen »

Oh Alison,

I just got back from my Mom's and saw this thread. My prayers and love go out to you and your family.
It's difficult to find the right words to say in times like these- those that will give you hope and make
you feel better. But know that I will be thinking and praying for you and your family, and that you are
in my heart always. If you want to talk and I'm online, I'll be there for you. I will have to get Skype this year.
I've been putting it off for fear of viruses.
"Humor is nothing less than a sense of the fitness of things." Carole Lombard
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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Thanks Brenda, I hope you had a good Xmas. I too need to get reconfigured for skype, I've had it before and never been troubled with viruses.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
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intothenitrate
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Re: SAY A PRAYER

Post by intothenitrate »

Allison,

I usually don't scroll all the way down to the bottom of Board Index, so I just learned about your ordeal. I can't add any more than what's been said already, but I'll be sending my very best thoughts to you and dear little Libby.
"Immorality may be fun, but it isn't fun enough to take the place of one hundred percent virtue and three square meals a day."
Goodnight Basington
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charliechaplinfan
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Re: SAY A PRAYER

Post by charliechaplinfan »

Thank you.
Failure is unimportant. It takes courage to make a fool of yourself - Charlie Chaplin
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Sue Sue Applegate
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Re: SAY A PRAYER

Post by Sue Sue Applegate »

Dear Allison,

My thoughts and prayers are with you and your family.

Sincerely,
Christy
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silentscreen
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Re: SAY A PRAYER

Post by silentscreen »

Alison,

I told my very good friend Kathy about Libby today. She is Mum to three grown boys, is a widow, and runs her own business. Quite a lady! She and I, and another friend, Barbara, are the ones going on the cruise in March. What a trio we will make! 8)
We both agree that it must be very difficult to not know as of yet what's causing these fits. I told Kathy how lovely and what a good child
your Libby is. She will be all right in the long run. Hang in there! You've lot's of people thinking and praying for her!

Brenda
"Humor is nothing less than a sense of the fitness of things." Carole Lombard
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